An AffaiЯ Worth Remembering With Huntington's Disease-Incurable Love & Intimacy During an Incurable Illness 10th Anniversary Edition
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This book is Debbie’s journey as wife, mother, breadwinner, caregiver and widow/spouse survivor of Huntington's Disease. (HD) It is about creating "Awareness" and giving the families affected by HD a "Voice" to a situation that few understand, including friends, family, co-workers, and the community. HD is REAL and knowledge of the disease and its ripple effect on a family is REAL.
Huntington's Disease is a progressive, life stripping hereditary disease for which there is no cure. LOVE is the most powerful medicine available in living with and caring for a person at-risk and in the throes of it. This is a Love Story that illustrates how a marriage and a family can live, survive and thrive with an illness. Humor, frustration and sadness are just a few emotions experienced by the reader. True Love prevails as this disease bruises and batters a family's spirit. Many gifts are discovered during times of illness. Incurable love and intimacy are two such gifts.
This Anniversary Edition has been updated to reflect her 16th year of grief after her husband’s death.
Original printing 2014
Paperback ISBN 979-8-9912212-1-4
This book speaks to at least four communities, those affected by Huntington's Disease or any chronic, progressive or terminal illness; the spiritual community, those who find strength through faith in the most trying moments; the therapeutic community, those who treat individuals, couples and families affected by illness; and the medical community, those doctors and other medical professionals, whether in primary care or specialists, who treat the patient, their caregivers or other family members of the illness, which can complicate the healing process.
Book Talks & Signings:
Debbiepausig.books@gmail.com North Haven, CT, USA
Endorsements
This is a love story, a story of relationships, both easy and difficult ones. The pain and love and grace come through very clearly. This book is for everyone. It tells of the conviction, fortitude, strength and love that we must have in the face of life's delivery of unbearable tragedy. It is a spiritual story. One of high hopes, desperate despair, and a return to human dignity that is empowering and vital. I highly recommend this book and I am left wondering about “The sailor who fell from grace with the sea.…”… J. Edward Lynch PhD, Co-author of Principal and Practices of Structural Family Therapy, Co-editor of Messengers of Healing: A New Generation of Family Constellation Practitioners.
As you read this book, journey with the author as she experiences a deep, abiding and incurable love based on faith for her husband as he fights through an incurable disease. Be with her as she lives out the marital promise: “I will love you…through sickness…until death do we part,” and discovers that their love can transcend the pain, hardship, loneliness, discouragement and fear of an untimely death. Learn from her that “soul intimacy” is the deepest love possible in a relationship that can last through, and in spite of death…. Mauryeen O’Brien O.P., Author of: New Day Journal, A Journey from Grief to Healing.
Every family touched by HD has a different story. Each story is worth telling. Simply put, this one is a love story. A love that began with a husband at-risk, that grew as they shared the same career, that changed as their family grew, that evolved as developing HD complicated it, and that continues to endure for a Mom and her children who survived the curveballs, complications and all the losses that HD put in front of them. As a woman, wife, Mom, retired police officer and marital and family therapist, Debbie keeps you engaged in their story in a very candid, honest but reassuring way. For spouses who are worrying and wondering about what lies ahead, it is a compelling read. For everyone touched by HD, the story of her HD road is worth telling; and certainly worth reading. Jimmy Pollard , Author of HURRY UP and WAIT: A cognitive care companion, Huntington’s Disease in the middle and more advanced years.
On August 20, 2015 I was invited as a guest on the CTV (Connecticut TV) talk show Got Girlfriends. www.ugotgirlfriends.com. Here are a few photos. Thanks ladies! The interview will be available to view soon.
Please visit them on Facebook and LIKE
https://www.facebook.com/ugotgirlfriends?fref=ts
Sometimes you need help with life’s challenges. Not to worry. You got girlfriends!
info@ugotgirlfriends.com, www.ugotgirlfriends.com!
Comcast cable viewers in Hamden, West Haven and New Haven should look for GotGirlfriends? on public access TV, channel 26 Wednesdays at 10am and Sundays at 5pm. To view previous guests go to www.citizens.org; click on VOD, then click on VOD-CTV (not all shows available).
August 18, 2015: It's official!!! An Affair Worth Remembering With Huntington's Disease is now posted on the HDSA.ORG website. http://hdsa.org/shop/hdsa-partners/
Now listed in the Southern Connecticut State University (SCSU) Alumni Magazine
Summer 2015 issue page 35
Copy and paste the link below
http://issuu.com/scsu/docs/southern-alumni-magazine-summer-201?e=1560078/13637726
The “Freshman 15 16” of Grief Losing My Forever Love & Finding My Way
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Ten years ago, Debbie Pausig took a chance and self-published her first book, An AffaiЯ Worth Remembering With Huntington’s Disease. It was where she took us through the caregiver’s journey of her love story entangled with the incurable, Huntington’s Disease. It was a journey many caregivers related to, no matter what the disease, because it is all about love.
The “Freshman 15 16” of Grief begins when Huntington’s Disease took the life of her husband and now reaches a larger audience. Debbie extends out to those who have not only lost a spouse through death. The journey traverses’ other losses and unexpected growths during the midlife + aging process that have occurred in the 16 years after the death of her forever love. This is a timeframe that is full of both expected and unexpected changes: Widowhood, single parenthood, returning to school, unemployment, pet loss, career reinvention, menopause, becoming an adult orphan, relocation, adult children, travel, fun, learning, gratitude, friendships and the general aging process to the Medicare age of 65. That is the progression of her life.
Real and raw, sad and humorous, this book validates the power and resilience of the human spirit. And the grace and mercy that God bestows on us as we learn to live without those loved ones who have died. And the ability to adapt to the constant changes in life.
Paperback ISBN ISBN:979-8-9912212-0-7